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HealthH.R. 4709Not Yet VotedComments

Newborn Screening Saves Lives Reauthorization Act of 2025

Official title: To amend the Public Health Service Act to reauthorize certain programs under part A of title XI of such Act relating to genetic diseases, and for other purposes.

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How Congress Voted

What Happened in Congress?

Pending

Not yet voted on the floor.

Where the Bill Stands

  1. Introduced, done
  2. Committee, current stage
  3. Floor Vote, not yet
  4. Outcome, not yet

What This Bill Does

This bill reauthorizes through FY2030 and revises several programs and activities relating to newborn screening for certain conditions and diseases.

Among its changes, the bill reauthorizes and makes mandatory

  • the Hunter Kelly Research Program at the National Institutes of Health, and
  • national surveillance activities conducted by the Centers for Disease Control and Prevention.

The bill also provides statutory authority for current regulations that exempt federally funded research on non-identified newborn blood spots (i.e., residual blood samples used to screen for serious conditions) from regulations that govern research on human subjects.

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Related Documents

Bill on Congress.govWeb Page ↗ (opens in a new tab)

Timeline

  1. House committee actionsReferred to the Subcommittee on Health.
  2. Library of CongressIntroduced in House
  3. House floor actionsReferred to the House Committee on Energy and Commerce.
  4. Introduced
  5. Committee

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